When the chaos of rare disease arrived in our lives the scariest part was feeling so alone, not knowing who to talk to, where to go, what to ask or what to do.  I realized I spent hours on the internet looking for…. answers?? help?? what to do?? a guide??

I spent so many lost hours until I began to organize my ideas and came to the clumsy conclusion that I had to help other people in my situation.  It was my responsibility to find other scared lost families fighting rare diseases and offer my hand, create a community, come together as individuals to create the strength of a community.  I wanted to give them the answers, support and direction… I wanted to help those other children like Chloe born into a destiny the meant learning to rewrite it.  That is how Bubbles and Dreams was born.  A world full of happy children, bright colors, healthy and sick where their differences brought them together and made them all better.