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X-WR-CALDESC:Events for Investigación para Chloe
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DTSTART;TZID=UTC:20200307T190000
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SUMMARY:"Meet Chloe" Charity Dinner March
DESCRIPTION:BREATHE™ is committed to supporting our local community.\nIn addition to our sustainable approach\, we aim to collaborate with social causes.\nThis Spring\, our challenge is to change a little’s girl life. \nChloe is 11 years old from Marbella and suffers an ultra rare disease. There are only 12 known cases in the world. Chloe is the only case in Spain. \nIt affects her muscular and nervous system. It is progressive and invalidating. The damages are irreversible.\nHer hips\, legs and speech are already affected. It’s urgent to stop the damages. \nAfter 7 years looking for help and answers to an undiagnosed disease\, the Germans Trias and Pujol Institute\, led by Dr. Matilla\, in coordination with Dr. Posadas and the Carlos III Institute\, discovered the cause was a mutation in the VPS13D gene but there is still no treatment available to stop the debilitating disease. \nWe are hosting a Charity Dinner for Chloe on Saturday 7th of March 2020\, from 8pm onwards.\nSet Menu\, 90€/pp \nChloe deserves a future… Please help us fund the research to find a treatment! 💓💓 \nCall 952 036 494 or email reservations@breathe.life\nWhatsApp (+34) 697 370 256
URL:https://investigacionparachloe.org/en/evento/meet-chloe-charity-dinner-march/
LOCATION:Breathe Marbella\, Nueva Andalucia\, Calle los Lirios\, Marbella\, Málaga\, 29660\, Spain
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